"Your bloods are normal, so there's nothing wrong.", what you've probably been told

Fibromyalgia

NHS guideline NG193 covers the assessment and management of chronic primary pain, including fibromyalgia. It sets out specific recommendations for assessment, shared decision-making, and which pharmacological treatments should and should not be offered.

The wait: Diagnosis often follows years of tests that come back normal.

What GPs miss

NG193 explicitly recommends against starting paracetamol, NSAIDs, opioids or gabapentinoids for chronic primary pain. It does recommend supervised group exercise, acceptance and commitment therapy, and certain antidepressants.

The letter asks for

  • An NG193-aligned chronic pain assessment
  • Discussion of recommended interventions (supervised exercise, ACT)
  • Reasoning if non-recommended medications are continued

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Frequently asked questions

Why is the letter useful if there's no cure?

Even where treatment options are limited, NG193 sets clear expectations for assessment and shared decision-making. A documented request gets that assessment on record.

What you hear vs. what NG193 says

What's usually said in the room

"Your bloods are normal, so there's nothing wrong."

What the guideline actually says

NG193 explicitly recommends against starting paracetamol, NSAIDs, opioids or gabapentinoids for chronic primary pain. It does recommend supervised group exercise, acceptance and commitment therapy, and certain antidepressants.

Source: Chronic pain (primary and secondary) in over 16s: assessment of all chronic pain and management of chronic primary pain (NG193)

What to do next

You have just read what the guidance says. The gap most people hit next is getting that in writing, on their record, in front of their GP.

Your GP has not acted on it

We draft a formal letter to your NHS GP citing NG193, built from a 3 minute assessment in your own words. £39. Free redraft if anything reads wrong.

You are claiming PIP for this too

PIP award rates, trend and mandatory reconsideration for fibromyalgia, computed from the DWP's Stat-Xplore database.

The same page covers what to do if you have already been refused.

You send the letter, not us. General information, not medical advice.

Where Fibromyalgia sits in the DWP's PIP award-rate league table

Benefits and rights for Fibromyalgia

Outcomes from people with Fibromyalgia

One short email each Sunday, anonymised stories from people who put their case to their GP in writing.

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