Guides

Know your rights.
Then put them on the record.

Plain-English UK guides on your rights as an NHS patient, your GP's duty of care, how to make a complaint that actually gets answered, and how to access your medical records.

Pillar guide · 1

If you've been dismissed · 1

Step by step · 1

Patient rights · 8

Your rights as an NHS patient

What the NHS Constitution actually entitles you to — and what to do when a GP or trust ignores it.

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Do GPs have to follow NHS guidelines?

Are NHS guidelines legally binding on GPs? What the GMC and NHS Constitution actually require, and what to do when a GP departs from NHS guidelines without a reason.

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CIRS in the UK: why the NHS doesn't recognise it — and what to ask for instead

CIRS isn't a NHS-recognised diagnosis or an NHS care pathway. Here's the honest picture, and the recognised UK routes (MCAS, NG188, ME/CFS, chronic pain) that actually get investigations done.

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How to get a second opinion on the NHS (UK)

How to request a second opinion from a different NHS GP or specialist — your rights, how to ask, what to say, and what to do if your request is refused.

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NHS referral refused: how to appeal (UK)

What to do when your NHS GP refuses a specialist referral — your rights, the appeal process, Right to Choose, and how to escalate a referral refusal.

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Prescription refused by GP: what to do (UK)

What to do when your GP refuses to prescribe a medication — your rights, how to challenge the refusal, when to ask for a second opinion, and how to escalate.

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Diagnostic overshadowing in the NHS: what it is and what to do

How to spot diagnostic overshadowing in NHS care — when a known condition masks new symptoms — and what to do to get the new symptoms properly investigated.

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GP gatekeeping: how to recognise it and what to do (UK)

How to spot GP gatekeeping in the NHS — when GPs block access to care you are entitled to — and the specific steps to get past it and onto the right pathway.

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Records · 1

Complaints & PALS · 7

Right to Choose · 5

Condition pathway · 10

MCAS diagnosis (UK): the NHS pathway and what to ask for

How Mast Cell Activation Syndrome is actually diagnosed in the UK, the consensus criteria, NHS immunology route and private alternatives.

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MCAS symptoms checklist (UK)

A plain-English checklist of common Mast Cell Activation Syndrome symptoms across body systems, with triggers, red flags, and what to bring your GP.

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How to get an endometriosis diagnosis (UK)

The NHS guideline NG73 endometriosis diagnosis pathway in the UK — symptoms to record, GP referral wording, scans, and laparoscopy.

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Fibromyalgia diagnosis (UK): the NHS pathway

How fibromyalgia is diagnosed in the UK — 2016 ACR criteria, NHS guideline NG193, GP and rheumatology pathway, and what tests rule other things out.

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ADHD assessment NHS waiting list (UK): what to expect

What NHS adult ADHD waiting times actually look like, how Right to Choose changes them, and what to do while you wait.

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ME/CFS diagnosis (UK): the NHS guideline NG206 pathway

How ME/CFS is diagnosed in the UK under NHS guideline NG206 — the four core symptoms, the GP and specialist pathway, what should NOT be offered (graded exercise), and what to ask for.

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Cluster headache: NHS treatment (UK)

How cluster headache is treated on the NHS under NHS guideline CG150: high-flow oxygen, subcut sumatriptan, verapamil prevention, and the neurology referral pathway.

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Migraine: NHS pathway and CGRP injections (UK)

How migraine is treated on the NHS under NHS guideline CG150 — the preventive ladder, Botox for chronic migraine, and how to access the CGRP monthly injection drugs.

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POTS diagnosis (UK): the NHS pathway and what to ask for

How Postural Orthostatic Tachycardia Syndrome is diagnosed in the UK — the NHS tilt table test, active stand criteria, GP referral pathway, and what to do if your symptoms are dismissed.

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Hypermobility and EDS: NHS referral and diagnosis (UK)

How hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) are diagnosed in the UK — the 2017 criteria, NHS rheumatology and genetics pathway, and what to do if your GP dismisses joint pain or dislocations.

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Long Covid · 3

Refused referral · 1

NHS guidelines & patient rights · 1

EHCP · 4

HRT & menopause · 5

PIP & disability benefits · 11

PIP claim (UK): the complete guide to Personal Independence Payment

How Personal Independence Payment (PIP) works in the UK — eligibility, the PIP2 form, descriptors and points, the assessment, mandatory reconsideration, appeal, and current rates.

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PIP for ADHD (UK): how to claim and which descriptors apply

How adults with ADHD can claim PIP in the UK — the activities where ADHD scores points, the reliability test, evidence to send, and what to say at the assessment.

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PIP for autism (UK): how to claim and which descriptors apply

How autistic adults can claim PIP in the UK — the activities where autism scores points, sensory and social descriptors, evidence to send, and what to say at the assessment.

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PIP for fibromyalgia (UK): how to claim and which descriptors apply

How adults with fibromyalgia can claim PIP in the UK — the activities fibro scores on, the fluctuating-symptoms test, fibro fog, and evidence to send.

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PIP for endometriosis (UK): how to claim and which descriptors apply

How women with endometriosis can claim PIP in the UK — cyclical and fluctuating symptoms, the 50% rule, descriptors that apply, and evidence to send.

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PIP for ME/CFS and Long Covid (UK): how to claim

How adults with ME/CFS or Long Covid can claim PIP in the UK — post-exertional malaise, the 50% rule, reliability test, and the descriptors that apply.

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PIP form (PIP2): how to fill it in (UK, 2026)

How to fill in the PIP2 "How your disability affects you" form — answer by descriptor, use the reliability test, attach the right evidence, and avoid the common mistakes that get claims refused.

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PIP descriptors explained (UK): every activity and what the points mean

Every PIP descriptor explained in plain English — what Daily Living and Mobility activities actually test, how points are scored, and which descriptors apply to common conditions.

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PIP mandatory reconsideration (UK): how to win more points

How to request a PIP mandatory reconsideration in the UK — when to do it, what evidence to add, how to argue descriptor language, and why the 22% overturn rate is not the end of the road.

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PIP appeal tribunal (UK): how to win at First-tier Tribunal

How to appeal a PIP decision to the First-tier Tribunal in the UK — form SSCS1, what to expect at the hearing, the 70% win rate, and how to prepare your evidence and arguments.

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PIP telephone assessment (UK): what to expect and how to prepare

What happens in a PIP telephone assessment in the UK — how Capita and Maximus conduct them, what questions they ask, how to answer using descriptor language, and your right to record the call.

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Work, sick pay & rights · 5

NHS access · 3

Disability benefits · 5

Carer's Allowance UK: who qualifies, the £196 earnings cliff, and how to claim

How Carer's Allowance works in the UK — the £83.30/week payment, the 35-hour rule, the £196 earnings cliff, the underlying-entitlement route for State Pensioners, and the SDP trap to avoid.

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Attendance Allowance UK: 2026 rates, who qualifies after State Pension age, and how to claim

How Attendance Allowance works for people over State Pension age — £73.90 and £110.40/week, the 6-month qualifying period, the Special Rules for End of Life, and how to fill in form AA1.

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Council Tax disability reduction (UK): the band-down scheme, SMI disregards and how to claim

Three Council Tax discounts for disability-related households — the Disabled Band Reduction Scheme, the Severe Mental Impairment disregard worth 25% or 100%, and the means-tested Council Tax Reduction. They stack, and backdated SMI refunds run into the thousands.

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Motability Scheme UK: who qualifies, what you exchange, and how the lease works

How the Motability Scheme works — exchange your PIP enhanced mobility, DLA higher mobility or AFIP for a leased car, scooter or powered wheelchair with insurance, servicing, tyres, breakdown and 60,000 miles included.

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New Style ESA (UK): who qualifies, the 365-day rule and how to claim alongside UC

How New Style Employment and Support Allowance works — the NI contributions test, the assessment-phase rate, the Support Group vs Work-Related Activity Group, the 365-day limit, and how it sits alongside Universal Credit.

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ADHD · 8

Shared care agreements for ADHD in the UK

What shared care actually means after a Right to Choose ADHD diagnosis, which GPs typically accept it, and what to do if yours refuses.

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Right to Choose ADHD providers compared (UK)

Side-by-side comparison of the main NHS-contracted Right to Choose ADHD providers — wait times, assessment format, shared-care support and cost.

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Private ADHD assessment cost in the UK (2026)

What a private adult ADHD assessment actually costs in the UK — typical ranges, what's included, titration costs, and why NHS Right to Choose uses the same providers for free.

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ADHD or anxiety? Telling them apart (UK)

Up to half of adults with ADHD are first diagnosed with anxiety. How to tell the two apart, why GPs misdiagnose, and how to get an NG87 reassessment.

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ADHD in women: late diagnosis in the UK

Why women are routinely missed for ADHD, the inattentive presentation, masking and burnout, the perimenopause overlap, and the NHS NG87 + Right to Choose pathway.

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Famous people with ADHD (UK)

UK and international public figures who have spoken openly about their ADHD diagnosis — each entry cited to a real interview, podcast or article.

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Is ADHD a disability in the UK?

How ADHD qualifies as a disability under the Equality Act 2010 §6, what reasonable adjustments you can ask for at work, and how Access to Work and PIP apply.

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Private ADHD assessment cost UK 2026: full price breakdown and provider checklist

2026 cost breakdown for assessment, titration, reviews and private prescribing, plus post-Panorama shared-care reality and a provider vetting checklist.

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NHS rights · 2

HRT and menopause · 1

Scotland · 3

Northern Ireland · 1

PIP · 7

PIP for anxiety: which descriptors apply and how to make your claim count

Which PIP descriptors anxiety scores against, the reliability test, and how to evidence panic, avoidance, and engaging with strangers.

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PIP for depression: which activities score points and how to describe your worst days

How depression scores against Daily Living activities, the Reg 4 reliability test, and how to describe a bad day without underselling it.

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PIP for mental health conditions: descriptors, evidence, and what to say at assessment

Hub guide covering anxiety, depression, PTSD, bipolar, EUPD, OCD and psychosis — descriptors, MH v SSWP, and the evidence ladder.

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PIP for chronic pain: descriptors, fluctuating conditions, and how to evidence pain that doesn't show on tests

How chronic pain (fibromyalgia, arthritis, back pain) scores against PIP descriptors, the reliability test, and evidencing invisible pain.

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PIP for EDS and hypermobility: the descriptors that apply and what evidence to send

How hEDS and HSD score against PIP — subluxations, fatigue, autonomic overlap — plus the rheumatology and physio evidence to attach.

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PIP for POTS (postural tachycardia syndrome): eligibility, descriptors, and evidence

How POTS scores against PIP — collapse on standing, heat intolerance, pre-syncope — plus tilt-table and cardiology evidence to attach.

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PIP Mandatory Reconsideration: letter template and how to win in 2026

Full sample MR letter, the 1-month deadline, Regulation 4 reliability test and the case law that wins reconsiderations.

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Work · 1

DLA · 1

UC / ESA · 1

Blue Badge · 1

SEND · 1

The next step

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