"im mostly bedbound so i can only do things in tiny bits. did half of it, closed my eyes for an hour, finished it. The letter had the bit about NG206 and that graded exercise isnt recommended anymore, which is exactly what id been pushed into twice and got worse from. new GP read it and stopped. shes doing a home visit now instead of making me come in. i cried, sorry. thank you x"
“Honestly wasnt sure it would do anything, its just a letter isnt it. But it lists everything in order with dates and it doesnt sound emotional even though i am. Got a full set of bloods, coeliac screen and a referral to the fatigue service. Only 4 stars cos the wait for that service is 10 months but thats not their fault is it.”
ME/CFS · Sunderland
Jul 2026
“Been asking for the long covid clinic since january and everytime i got "give it more time". Did the questions on my phone in bed, took about 5 mins. Sent the letter thru the surgery website on the thursday. Friday afternoon the GP rang me himself. Referral done, bloods booked, and he apologised. I didnt need a better doctor i just needed to say it properly.”
Long COVID · Nottingham
Jul 2026
“My lads been off school 14 months. Every appointment i came out feeling like id been told off. I used this to write it down for him instead of me trying to explain while hes sat there crying. Paediatric referral came thru in 9 days. 14 months of nothing and then 9 days. Thats what gets me.”
Long COVID · Stoke-on-Trent
Jul 2026
One short email each Sunday, real stories from people who got their GP to take them seriously.
