"Bad periods are normal. Take paracetamol."— what you've probably been told

Endometriosis

NICE NG73 sets out a clear pathway for assessment, investigation and referral of suspected endometriosis. It is explicit that diagnosis should not depend on transvaginal ultrasound being normal.

The wait: Average UK diagnostic delay is 8 years.

What GPs miss02

The average diagnostic delay in the UK is around 8 years. NG73 is clear: persistent pelvic pain, period-related pain affecting daily activities, and certain associated symptoms warrant investigation and gynaecology referral, not repeated reassurance.

The letter asks for03
  • An NG73-aligned assessment for endometriosis
  • Pelvic ultrasound (with caveat that a normal scan does not exclude the diagnosis)
  • Referral to a gynaecology service or specialist endometriosis centre

My ultrasound was normal — does that rule out endometriosis?

No. NG73 explicitly states a normal ultrasound does not exclude endometriosis. The letter cites this directly.

What you hear vs. what NG73 says

What's usually said in the room

"Bad periods are normal. Take paracetamol."

What the guideline actually says

The average diagnostic delay in the UK is around 8 years. NG73 is clear: persistent pelvic pain, period-related pain affecting daily activities, and certain associated symptoms warrant investigation and gynaecology referral, not repeated reassurance.

Source: Endometriosis: diagnosis and management (NG73)

Outcomes from people with Endometriosis

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